
Over the next fews days/weeks I’ll get everyone up to speed on how we got here. For now, let me sum up. The important thing to know is that I have cancer. Well, two different cancers actually. Basaloid Sqaumous Cell Carcinoma that originated in my thumb and spread to my left armpit and Polymorphous Adenocarcinoma that is located behind my tongue and on the right side of my neck.
Ok, I guess actually I have two metastatic cancers. Boy, I didn’t see that one coming. After what seemed like a never ending stream of appointments and surprises, we have a pretty decent treatment plan locked in. On Monday morning Lindsey and I will arrive at IU Health North bright and early at 5 am. I’ll have Transoral Robotic Surgery (TORS), which means the doctor uses a robot to reach into my neck and cut out the tumor behind my tongue.
Additionally I’ll have a neck dissection. Which sounds a bit more gruesome than it is. I picture that poor formaldehyde soaked pig that I dissected in high school. This time the pig is me, but thankfully there is no formaldehyde involved. We know that there is 1 decent sized tumor in my neck. What we don’t know is if the other lymph nodes around this tumor also are cancerous. This will be an important step in the overall process. If no cancer remains, we are in pretty good shape. It means we caught it early and it didn’t sneak off anywhere else. If they do find additional cancer cells, then all is not lost. It just means there may still be some stray bits out there that have escaped. So they’ll just turn up the radiation and zap me a bit harder than they would have otherwise.
Linsdey, the kids, and I are in good spirits. It’s not like this is our first cancer rodeo. And oh my goodness it will be so much easier to do this with teenagers rather than 3 kids in diapers the first time around and 3 toddlers the 2nd time around.
If you came here from my previous blog (thankyouforanotherday.com) then you know what to expect. If you’re new to this whole “Rob blogs his medical trials and tribulations” thing then welcome. It’s a fun ride with bad writing, dry humor, random thoughts, and a few medical facts thrown in to orient everyone around what is going on. We’re not quite sure how long this journey will be, but it will include at least 2 surgeries, plenty of radiation, and then some immunotherapy for good measure.
The best news though is no chemo. Medicine has advanced a long way since the last time I was treated. And that’s really the important thing. Every day I fight and every day longer I live, more and more technology comes out. Medical advances are made and breakthrough treatments are discovered. It’s just a matter of staying in the ring and fighting long enough.
So here we go again. Round 3 and 4 of kicking cancer’s ass. Not only am I undefeated but I’m stubborn as hell and plan to stick around for awhile. So basaloid squamous cell carcinoma and polymorphous adenocarcinoma get ready (boy I miss the simplicity of telling people I have ALL). The clock is ticking. Your time is short. You need to get the hell out of my body. It’s go time.
๐ซถ๐ป you
Can you just try doing things the easy way? Noooo, you have to be all dramatic and do not one but two different cancers! I am sure you will kick arse and take names later. I hope your white board stays updated (I know that was a cause of angst during your last go round). Sending love and positive energy to you, Lindsay and the kids.
Rob, the Litkes will be praying hard for you. You inspire us with your positivity and faith. Cancer doesnโt stand a chance!
From Teresa and me, we are praying for you!
Oh man, Rob. If anyone can do this is, itโs you! We will be there to support you however you and Lindsey need. God be with you.
You got this!! Nothing can hold Berta Dave down.
I’m thinking of you and the family. I wish, hope and pray for all the best outcomes for you.
Sorry to hear this, my friend. You will knock these out. #robstrong
Your tough- you will beat this!
Sorry to read your news but so very glad medical advances are in your current treatment plan! This is much better today than when I worked Hem/Onc/BMT in the 90โs!!!!!
Healing (and conquering thoughts) for you in this journeyโฆ.
Tracy
Well I hate this post and love it at the same time. Iโve been missing your writing but maybe next time you could just blog about a broken toenail or a creaky joint or something and leave cancer out of the mix. Prayers will be flooding you from this house.
It gives me comfort to see you going through this in the Culross way – you know you will beat this and no one can tell you any different because you are Culross and this will be another victory. My prayers and thoughts and love and comfort and anything else positive I can think of to throw in the mix are with you, Lindsey, and the kids. I love you. Sending you many hugs. ๐๐๐
I know that you know all that I would say in my comment! It would take hours to read, and redundancy to decipher! We are all on this journey right with you; God is leading the way! ๐ฅฐ๐ฅฐMom
I have no idea what I did wrong with my name ๐คฃ
You can count on us to fight on our knees for you, Lindsey and the kids. No one should have to go through cancer treatment. Praying cancer has a cure soon and the treatments will go better than expected.โค๏ธ
I can not even begin to put into words how amazingly proud I am that you are my brother! First of all you are actually a very good writer and more importantly you are a fighter and as you said you are undefeated! In fact we could even say you always win and this will be no exception! I love you and Iโm praying for you every single day!
You can count on us to fight on our knees for you, Lindsey and the kids. No one should have to go through cancer treatment. Thank you for sharing your journey with us.
I know you will beat this. I have honestly truly admired you – not just for beating cancer twice (soon to be four times), but for how you beat it. You beat it with an incredible mindset, deep determination, and with incredible strength (RobStrong) of mind, body and spirit. We will be praying for you along with an army of friends and family. It will be a challenging journey, but in the end the result will be Rob: 4 – Cancer: 0.
I can not even begin to put into words how amazingly proud I am that you are my brother! First of all you are actually a very good writer and more importantly you are a fighter and as you said you are undefeated! In fact we could even say you always win and this will be no exception! I love you and Iโm praying for you every single day!
Praying for you and your family. Admittedly, we get distracted, so thank you for updates, because you get a surge of prayer when we read them!
Praying for you, Rob. You and Lindsey please let me know what I can do to help.